ONF NeuroMatters newsletter
October 12, 2016
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ONF, with its partner the Institut national d’excellence en santé et en services sociaux (INESSS) is proud to release the INESSS-ONF Clinical Practice Guideline for the Rehabilitation of Adults with Moderate to Severe TBI.
The INESSS-ONF Guideline is specific to adults who have sustained a moderate or severe TBI. It covers all areas affected following a TBI that pertain to rehabilitative care; addressing physical, sensory, cognitive, behavioral and emotional components as well as associated conditions such as behavioral, mental health and addiction issues. The CPG provides recommendations for the organization of rehabilitative services and systems of care; covering all phases of the rehabilitation process (subacute, intensive functional rehabilitation and community integration and participation). The Guideline provides assessment and intervention procedures for the various effects of TBI that can occur over time, with attention to aspects of early care and continuity across the continuum of services.
The development of the Guideline was based on both the adaptation of recommendations available in existing CPGs and the formulation of new recommendations based on scientific evidence and expert opinion.
Click here to access the Guideline - www.braininjuryguidelines.org
Ontario researchers, many of whom are supported by the Ontario Neurotrauma Foundation (ONF), were well-represented at the International Spinal Cord Society (ISCoS) Annual Scientific Meeting in September. Held in Vienna, Austria the meeting brings together clinicians, researchers and people living with spinal cord injury (SCI) to share, discuss and debate the latest research findings in the areas of medical, surgical, rehabilitation and improvements in day-to-day living.
Sharing the outcome of research supported by ONF and partner the Rick Hansen Institute, ONF CEO Kent Bassett-Spiers, Dr. Keith Hayes and Phalung Joshi presented study findings at a workshop regarding the challenges and opportunities in establishing and maintaining robust multi-centre clinical trials.
Based on information gathered at a 2013 and 2014 ISCoS workshop, the study team identified the significance of upfront efforts required to create sustainable international studies as a key issue. “The strategy should include a clear and objective process for project selection, funding, operationalization (including recruitment and data management), accountability and integrated knowledge translation,” according to the findings. The 2016 workshop explored the practical aspects of creating international networks and collaborations that can effectively nurture international multi-site trials.
Engaging those living with SCI (“consumers”) in health care research, Dr. Tara Jeji of ONF, discussed the Canadian perspective on engaging people with SCI in health care research. Based on her own experience and the Canadian research agenda she provided a range of criteria to researchers identify and engage consumers in order to achieve results that are most relevant to them. ONF engages SCI stakeholders by connecting with advocates, knowledge mobilization sessions, expert panels to review research proposals and the ONF Quality of Life Committee.
“There are some essential elements that are a must if you want to engage people living with SCI in research. The Canadian Institutes of Health Research has developed a model that can be adapted,” says Dr. Jeji. “At ONF we are fortunate to have very active stakeholderswho are clear about what will improve their lives. Their knowledge and perspectives have ensured research outcomes move into new clinical practice.”
Other Ontario-based presenters and workshop leaders included researchers from the University of Toronto, London Health Sciences Centre, Centre for Family Medicine Kitchener Waterloo, University Health Network and McMaster University.
ISCoS, a U.K.-based organization. Through ongoing collaboration ISCoS seeks to ensure the efficient use of resources to support international research into spinal cord injury treatment, rehabilitation and education.
A new study based on the largest prospective cohort of children with concussion in the world was published in the Journal of the American Medical Association (JAMA). The study introduces a validated clinical prediction score that will help health providers and researchers to predict the duration of pediatric concussion symptoms.
ONF is proud to confund this study in partnership with the Canadian Institutes of Health Research (Institute of Neurosciences, Mental Health and Addiction). To find out more about this study please click here.
Ontario and National Spinal Cord Injury Researchers met in Toronto in October 2015 to discuss strategies to strengthen the Ontario SCI Research Network and the National SCI Network supported by the Rick Hansen Institute. The engagement and participation of a wide range of participants facilitated an engaging and productive discussion.
The next Network meeting is scheduled for May 12-14, 2017 at Eaton Centre Marriott hotel.
The Ontario Neurotrauma Foundation funded Spinal Cord Injury Ontario to develop and release a consumer guide for people with Spinal Cord Injury on preventing and treating pressure sores.