SCI Data Registry/Informatics
ONF is committed to using health informatics to improve the health, delivery of care and outcomes for people with SCI.
According to Canada's Health Informatics Association, health informatics involves the application of information technology to facilitate the creation and use of health-related data, information and knowledge.
Health informatics tools include not only computers, information and communications systems but also clinical guidelines, formal medical terminologies and condition-specific data.
ONF funded informatics initiatives:
Rick Hansen Spinal Cord Injury Registry
ONF has provided support to the Rick Hansen Institute on the development of The Rick Hansen Spinal Cord Injury Registry (RHSCIR). This is a national database of persons sustaining a SCI in Canada, containing demographics, injury details, diagnoses, procedures and patient outcomes. Individuals are enrolled at the time of injury and followed over their lifetime.
This registry has generated a wealth of research-ready data and has resulted in the production of multiple peer-reviewed articles, publications, conference presentations, and has been the recipient of five awards.
More information about the registry is available through RHI.
The Ontario SCI Informatics Strategy
The Ontario SCI Informatics Strategy is a provincially-based initiative. It is being designed to include:
- clinical data regarding patient care
- administrative data to look at epidemiology and patient flow through the system
- measurement of outcomes, performance and efficiency
The strategy encompasses all age groups across the continuum of care.
As a first phase of the strategy, the Ontario Spinal Cord Injury Registry Pilot Project (OSCIR), based on the RHSCIR model, initiated data collection in Ontario, addressed research questions and included a rehabilitation data set to capture a more complete picture of the continuum of care. See the OSCIR Report (PDF) for more details.