Ontario Spinal Cord Injury Research Network (OSCIRN)
In order to improve care for people with spinal cord injury (SCI), current practices must be continually re-examined to determine which are effective, new treatments and management approaches must be reviewed and tested their ability to provide cost-effective improvements in quality of life. Ontario Spinal Cord Injury Research Network (OSCIRN) harnesses the intellectual, clinical, and research resources of different clinical research centres throughout the province. The goal is to improve the evidence-base upon which clinical practice and health policy is established. OSCIRN is a collaborative network of clinicians and scientists, from five academic health science centres in the province of Ontario, working together to facilitate multi-centre clinical research from pre-hospital care, acute treatment, rehabilitation, primary care to community re-integration of individuals with a spinal cord injury. In-person meetings are held on an irregular basis. The network provides an opportunity for diverse groups to share intellectual and physical resources, benefit from infrastructural supports such as an informatics platform and centralized, web-based, multi-centre study management, and introduce cost-efficiencies in the conduct of multi-site collaborations. The network’s mandate is:
- Translational research across the continuum of care
- Integrated knowledge translation and implementation
- Integrated health economics
- Provision for investigator and industry-driven research
- Attract cutting-edge research to Ontario
Spinal Cord Injury Rehabilitation Evidence (SCIRE)
Spinal Cord Injury Rehabilitation Evidence is a comprehensive digital platform that offers evidence on a broad range of topics relevant to spinal cord injury rehabilitation and community reintegration established by a Canadian research collaborative. SCIRE reviews, evaluates, and translates existing research knowledge into a clear and concise format to inform health professionals and other stakeholders of best rehabilitation practices following SCI. SCIRE offers two versions of the best practices guides, one for clinicians and one for people living with SCI.
Ontario Neurotrauma Summits
In the fall of 2016, Ontario Neurotrauma Foundation (ONF) hosted three summits that brought together primary care and specialist clinicians, researchers, people living with SCI as well as community partners and policy makers. The focus and audience for each summit was unique but the main objective was to address gaps, identify opportunities which could lead to innovation and improvements in care around three key health issues faced by those living with SCI: access to Primary Care, Urohealth and Neuropathic Pain. About 150 people participated in the three sessions.
The Primary Care Summit prompted further work to develop a coordinated Ontario research strategy for primary care for SCI as well as a network of primary care providers from across Ontario with interest in SCI care and research as well as the involvement of people living with SCI. Since the summit, the success of the two Kitchener-Waterloo Mobility clinics has led to a a third primary care clinic modeled on the KW example in Iroquois Falls, Ontario.
The Neuropathic Pain Summit focused on gaps in current research and informing future research and implementation priorities in area of neuropathic pain. The Canadian Best Practice Guidelines for Management of Pain in SCI have been published as a supplemental edition of the Spinal Cord journal. Following the summit, a presentation done at Canadian Pain Society Meeting and case-based workshop at the 2017 national SCI conference. The Canadian Journal of Pain accepted a manuscript for publication on the process and recommendations arising from the pain summit. A case-based Workshop presentation was also offered at the national SCI conference.
The Uro-Summit reviewed current gaps, opportunities and best practices and provided advise to ONF and RHI on future research and implementation priorities. In follow-up, a one-day meeting was held in the summer of 2018 to develop and endorse the guidelines developed by the Canadian Urological Association including support for publication of “Guidelines for Diagnosis, Management and Surveillance Neurogenic Lower Urinary Tract Dysfunction in Individuals with a SCI.”
2020 Physical Disability Primary Care Summit
After creating a platform for building consensus strategies to improve care for individuals with spinal cord injury and other physical disabilities through the 2016 Primary and Community Care for Spinal Cord Injury Summit, in March 2020 the Mobility Clinic team and the Centre for Family Medicine Family Health Team in Kitchener/Waterloo, Ontario held a summit meeting to support discussion and collaboration on the improvement of healthcare for individuals with spinal cord injury and other physical disabling conditions through enhanced primary care delivery.
The meeting, chaired by Drs. James Milligan and Joseph Lee advanced collaboration through a panel discussion on the lived experience of spinal cord injury, advocacy for improved policies to better support individuals with SCI and Ontario Health system transformations.