Exiting the Lockdown: Implications for SCI Care
The International Spinal Cord Society (ISCoS) has been a model in promoting knowledge exchange within the SCI community to share research and strategies to improve care and rehabilitation. The network, through its meetings and activities endeavours to foster education, research, and clinical excellence.
Adapting to the present challenges, ISCoS has shifted their approach to increase digital engagement. Accordingly, they have launched a new podcast series that covers various aspects of spinal cord injury including etiology, prevention and care; that provide valuable insights regarding the most up to date information for those providing care for SCI. The fourth episode of the podcast features the Ontario Neurotrauma Foundation (ONF) Spinal Cord Injury Program Director, Dr. Tara Jeji and other international and provincial collaborators and experts. In part two of the “Exiting the Lockdown: Implications for SCI Care” episode, experts conclude the discussion tackling whether principles of management should change in as we prepare to exit lockdown along with other key considerations.
Listen to Episode 4 – Exiting the Lockdown: Implications for SCI Care and more episodes.
New caregiver resource for pediatric concussion
The Ontario Neurotrauma Foundation (ONF) has issued a family version of the Living Guideline for Diagnosing and Managing Pediatric Concussion to complement the clinical practice version first released in September 2019. The living guideline approach is the first of its kind in pediatric concussion and ensures guidelines stay current with monthly literature searches to support new evidence.
The family version of the guideline is designed for use by parents/caregivers and offers a series of recommendations to help children and adolescents with concussion recover safely and return to their everyday life.
The family version of the guideline mirrors in question and answer format the recommendations covered in the healthcare professional version. It includes keys definitions and examples to help parents and caregivers navigate their child’s concussion care. The ONF Living Guideline for Diagnosing and Managing Pediatric Concussion will be updated as research supporting change in clinical practice becomes available. The family version covers all the same sections and domains as the original guideline, including:
Section A: Concussion Recognition, Initial Medical Assessment, Management
Section B: Managing Concussion Symptoms
Section C: Biomarkers
Healthcare professionals are encouraged to share this resource with parents and caregivers as it promotes greater understanding of concussion care and management. With the help of the guideline, users will be able to better understand the implications of pediatric concussion.
ONF welcomes Kristen Reilly
As Knowledge Management and Translation Specialist, Kristen focuses on the development and dissemination of knowledge products to a broad variety of brain injury stakeholders including clinicians, policymakers, persons with lived experiences and their caregivers. Her work aims to make research more accessible and applicable to knowledge users in real-world settings. Some key projects in her portfolio include the Traumatic Brain Injury (TBI) Report Card, brain injury living guidelines user tools and resources, and concussion information bundles.
Her education in Public Health and Health Promotion informs her work and is complimented by professional experience within academia and the non-profit sector. Kristen is passionate about health equity and committed to knowledge translation as a strategy to engage and empower the brain injury community.
New Standards for Moderate to Severe Traumatic Brain Injury Rehabilitation
The Ontario Neurotrauma Foundation (ONF) has been a trailblazer in translating brain injury research into evidence-based guided resources to support healthcare providers in managing brain injury. In alignment with the release of the Traumatic Brain Injury (TBI) report card, ONF has produced a new set of standards to guide TBI care delivery. The Standards for the Rehabilitation of Adults with Moderate to Severe Traumatic Brain Injury is a new resource purposed to guide clinicians in providing standardized care across the province. There are significant gaps in care delivery based on region which impact overall patient outcomes and perpetuate inefficiencies in the Ontario Health system. The standards help to eliminate these gaps by providing all healthcare providers with up-to-date knowledge support equitable care pathways for all Ontarians regardless of their address.
The goal is to provide patients with the highest quality, current and evidence-informed care.
The aim of the standards is to improve the consistency of rehabilitation and supportive services accessible to persons with traumatic brain injury (TBI) to capture standardized components of effective rehabilitation. The standards are based on the Clinical Practice Guideline for the Rehabilitation of Adults with Moderate to Severe TBI and have been directed to healthcare providers and patients and families. Both versions are available in English and French.
The SCI Community Responds to COVID-19
At lot has changed over the past few months, as physical distancing has become the new normal many parts of the healthcare system have been challenged as we restructure how care is available and provided. The SCI network of researchers, funders, care providers, community members and allied professionals across Canada have united to form the SCI COVID-19 Committee. The committee, comprised of over 40 members and led by KITE Toronto Rehab Institute Senior Scientist Dr. Cathy Craven, was formed in March 2020 to encourage a collaborative approach for supporting the SCI community during the COVID-19 pandemic.
Recognizing the foreseeable gaps in care as well priorities of attending to health care needs during these uncertain times, the committee has developed and disseminated tools and resources to address challenges within crucial areas of primary care including urologic health and much more.
Navigating COVID-19: SCI Urology Guide (png for social media sharing)
Navigating COVID-19: SCI Urology Guide (pdf)
SCI Everything (podcast)
SCI Everything (videocast)
Hand Hygiene for People with Spinal Cord Injury
Mobility Clinic Pandemic Initial Telephone Outreach – Risk Identification
Fall Prevention Annual Reports
Fall Prevention Month 2019 Annual Report
Fall prevention strategy is a year-round effort, however during Fall Prevention Month in November we place greater emphasis on the prevention profile by rallying community partners to get involved with the campaign. Each year the Prevention team develops a toolkit complete with promotional materials, knowledge products, activities and other resources to support program planners and care providers as they drive campaigns across their organizations. The past year was no different, take a look at the Fall Prevention Month 2019 Annual Report for a closer look on the impact of the 2019 campaign.
Loop and Loop Junior Needs Assessment Survey Report
Loop is a digital bilingual platform that serves to connect communities of practices involved in fall prevention strategy. The framework that initially launched in 2015 has seen many developments including the launch of Loop Junior, which engages users specifically on childhood fall prevention strategies. In order to ensure the platforms are serving the needs of its users, each year the Prevention team conducts a Loop and Loop Junior Needs Assessment survey to better understand the needs of its members. The survey was completed by CoP members across Canada and other countries including the USA and UK. Take a look at what members had to say and the recommendations based on the feedback.
Loop and Loop Junior Needs Assessment Survey Report.