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Brain Injury Speaks

Known as the “invisible disease”, acquired brain injury (ABI) leaves many people feeling siloed; the heterogeneous nature of the brain injury community in Ontario is fragmented and in many cases access to care and service is determined by location. Brain Injury Speaks was birthed out of the need to break the silos and give equal voice to people with ABI across the province. The initiative created in collaboration with the Ontario Brain Injury Association (OBIA) is purposed to unify the voice of the ABI community and build a provincial network of allies.

While there are impactful networks operating on a regional level, the biggest challenge to the provincial community is this localized approach. The efforts of Brain Injury Speaks will strengthen provincial collaboration and connect allies to a centralized platform. Another challenge within the ABI community is the gap between the health care system and consumers. By collecting feedback from the community through regional representatives and working with implementation specialists to drive change and remove systematic barriers, the provincial advisory team will help to bridge that gap. The network will promote fluid communication between policy makers, allied health care providers, advocacy groups and the ABI community.

It’s not lost on me that there are significant gaps within the ABI community in Ontario; a part of my role as Stakeholder Engagement Coordinator for ONF and OBIA is to bridge those gaps by establishing a provincial network wherein all voices in the community are heard. This model/approach has been implemented successfully in the spinal cord injury community and I am looking forward to building the same momentum for Brain Injury Speaks over the next few months to unify the ABI voice in Ontario.

Chad Debison-Larabie, Stakeholder Engagement and Program Coordinator | ABI

The advisory team will be comprised of local champions across Ontario representing various regions of the province. The core group will seek to identify trends in local system challenges and support each other with strategies that can be implemented to engage their respective communities. This centralized approach will facilitate the dissemination of resources and materials and allow for streamlined data collection and survey activities.

If you have any questions or wish to be apart of this initiative contact Chad

NeuroMatters Newsletter

NeuroMatters is the source for news and information about research and best practices in injury prevention, care and treatment of spinal cord injury, acquired brain injury.